Abstract The aim was to associate living, health and oral health conditions with the quality of life (QL) of children and adolescents (CA) with sickle cell disease (SCD). Of the 120 eligible users of a public hematological service, 106 CA with SCD from 6 to 18 years of age, and their caregivers, answered semi-structured questions about socio-demographic, health and oral health conditions. For QL, we used the validated instrument PedsQLSCD™. The oral clinical examination occurred according to the guidelines of WHO and SB Brazil 2010. The majority of CA were non-white people (88%), mean age of 10.4 (±2.9) years, family income of up to two monthly minimum wages, for 03 to 05 members, with diagnosis of sickle cell anemia by neonatal screening, hospitalizations were due allergic crises, polypharmacy and dental caries (51%) were present. “About the Impact of My Pain” was the best-fit model for the QLSCD (adjusted R²=56%; AIC=28.67; p=0.04). Dental caries in permanent dentition worsened the QLSCD (OR=0.53; IC95%=0.35-0.78; p<0.05) and was associated with the type of school, car ownership, number of family members, of complications and of the medications. To overcome this scenario, programmatic actions are required, and implementation of public policies specifically directed towards these groups. living QL (QL (CA SCD. . (SCD) 12 service 10 1 caregivers semistructured semi structured sociodemographic, sociodemographic socio demographic, demographic socio-demographic PedsQLSCD PedsQLSCD™ 2010 nonwhite non white 88%, 88 88% , (88%) 104 4 10. ±2.9 29 2 9 (±2.9 wages 0 members screening crises 51% 51 (51% present About Pain bestfit best fit adjusted R²=56% R²56 R R² 56 AIC=28.67 AIC2867 AIC 28 67 p=0.04. p004 p p=0.04 04 p=0.04) OR=0.53 OR053 OR 53 (OR=0.53 IC95%=0.350.78 IC95035078 IC IC95%=0.35 0.78 IC95 35 78 IC95%=0.35-0.78 p<0.05 p005 school ownership medications scenario required groups (SCD 201 8 (88% ±2. (±2. 5 (51 R²=56 R²5 AIC=28.6 AIC286 p00 p=0.0 OR=0.5 OR05 (OR=0.5 350 IC95%=0.350.7 IC9503507 IC95035 IC95%=0.3 078 0.7 IC9 3 7 IC95%=0.35-0.7 p<0.0 20 (88 ±2 (±2 (5 R²=5 AIC=28. AIC28 p0 p=0. OR=0. OR0 (OR=0. IC95%=0.350. IC950350 IC9503 IC95%=0. 07 0. IC95%=0.35-0. p<0. (8 ± (± ( R²= AIC=28 AIC2 p=0 OR=0 (OR=0 IC95%=0.350 IC950 IC95%=0 IC95%=0.35-0 p<0 AIC=2 p= OR= (OR= IC95%= IC95%=0.35- p< AIC= (OR IC95%
Resumo Objetivou-se associar condições de vida, de saúde e de saúde bucal à qualidade de vida (QLV) de crianças e adolescentes (CA) com Doença Falciforme (DF). Dos 120 usuários elegíveis de um serviço público hematológico, 106 CA entre 6 e 18 anos de idade, e seus cuidadores, responderam questões semiestruturadas sobre condições sociodemográficas, de saúde e saúde bucal. Para a QLV, o instrumento validado PedsQL DF® foi aplicado. Na sequência, realizou-se o exame clínico bucal nas CA segundo diretrizes da OMS e do SB Brasil 2010. A maioria das CA era negra (88%), idade média de 10,4 (±2.9) anos, renda familiar de até dois salários mínimos, para 03 a 05 membros, diagnosticadas na triagem neonatal com anemia falciforme, internadas por crises álgicas, em uso de polifarmácia e com cárie dental (51%). O domínio “Sobre o Impacto da Minha Dor” foi preditivo da QLVDF (R² ajustado =56%; AIC=28.67; p=0,04). Nele, a cárie dental na dentição permanente piorou a QLVDF das CA (OR=0.53; IC95%=0.35-0.78; p<0,05), associando-se ao tipo de escola, posse de carro e do número de membros na família, de complicações da DF e de medicamentos. Os achados ratificam a dor como marca da DF e mostram a importância da saúde bucal na QLDF das CA. A implementação de políticas públicas específicas pode superar esse cenário. Objetivouse Objetivou se QLV (QLV (CA DF. . (DF) 12 hematológico 10 1 cuidadores sociodemográficas aplicado sequência realizouse realizou 2010 88%, 88 88% , (88%) 104 4 10, ±2.9 29 2 9 (±2.9 mínimos 0 falciforme álgicas 51%. 51 51% (51%) Sobre Dor R² R (R =56% 56 AIC=28.67 AIC2867 AIC 28 67 p=0,04. p004 p p=0,04 04 p=0,04) Nele OR=0.53 OR053 OR 53 (OR=0.53 IC95%=0.350.78 IC95035078 IC IC95%=0.35 0.78 IC95 35 78 IC95%=0.35-0.78 p<0,05, p005 p<0,05 p<0,05) associandose associando escola família medicamentos cenário (DF 201 8 (88% ±2. (±2. 5 (51% =56 AIC=28.6 AIC286 p00 p=0,0 OR=0.5 OR05 (OR=0.5 350 IC95%=0.350.7 IC9503507 IC95035 IC95%=0.3 078 0.7 IC9 3 7 IC95%=0.35-0.7 p<0,0 20 (88 ±2 (±2 (51 =5 AIC=28. AIC28 p0 p=0, OR=0. OR0 (OR=0. IC95%=0.350. IC950350 IC9503 IC95%=0. 07 0. IC95%=0.35-0. p<0, (8 ± (± (5 = AIC=28 AIC2 p=0 OR=0 (OR=0 IC95%=0.350 IC950 IC95%=0 IC95%=0.35-0 p<0 ( AIC=2 p= OR= (OR= IC95%= IC95%=0.35- p< AIC= (OR IC95%