Abstract The surging health and financial costs of diseases, disabilities, and disparities support the global acceleration of interests and investments in health AI for better, cheaper, faster, and fairer health solutions globally and locally. Yet there is no consensus on practically operationalizing responsible AI principles across diverse global sectors, states, and belief systems. This proof-of-concept study utilizes the global pluralistic ethical framework (the Personalist Social Contract) to therefore provide the first known Bayesian augmented AI-driven Computational Ethical (AiCE) and policy analysis integrating clinical, cost effectiveness, and healthcare disparity analyses with nationally representative data to estimate the global cost of healthcare disparities in colonoscopy (CS) and the savings from AI-enabled CS to reduce them. It suggests that reversing racial disparities particularly for Hispanics and Asians may save American healthcare systems $17.61 billion annually, with AI-augmented CS potentially contributing savings of $625.40 million for Hispanics and $289.00 million for Asians in particular (with similar cost savings for vulnerable communities in middle and low-income countries also). The above findings support the cost savings imperative for such strategic and capacity-building investment in these AI-driven measures to improve healthcare’s strategic aims of Sustainability, Effectiveness, Efficiency, and Equity (SEEE). Such empirical results inform the larger global bioethical argument from the twin dimensions of human dignity and human security (rooted in the personalist, multicultural, and metaphysical account of the person as a member of the global human family) to highlight the AI ethical imperative to optimize the performance of the global digital health ecosystem. Such an instrumental end is a critical means of advancing toward the ultimate end of the common good, in which the individual good of each person is safeguarded and in which it finds her/his fulfillment working toward.

Resumen El aumento de los costos sanitarios y financieros de las enfermedades, las discapacidades y las disparidades respalda la aceleración mundial de los intereses y las inversiones en IA (inteligencia artificial) sanitaria para lograr soluciones sanitarias mejores, más baratas, más rápidas y justas a escala mundial y local. Sin embargo, no existe un consenso sobre la aplicación práctica de los principios de la IA responsable en diversos sectores, estados y sistemas de creencias de todo el mundo. Este estudio de prueba de concepto utiliza el marco ético pluralista global (el Contrato Social Personalista) para proporcionar, por tanto, el primer análisis conocido de ética computacional (AiCE, por sus siglas en inglés) y política basado en IA aumentada bayesiana que integra análisis clínicos, de rentabilidad y de disparidades en la atención sanitaria con datos representativos a nivel nacional para estimar el costo global de las disparidades en la atención sanitaria en la colonoscopia (CS, por sus siglas en inglés) y el ahorro de la CS habilitada por IA para reducirlas. El estudio sugiere que revertir las disparidades raciales, en particular entre hispanos y asiáticos, puede ahorrar a los sistemas sanitarios estadounidenses 17.610 millones de dólares al año, con un ahorro potencial de 625,40 millones de dólares para los hispanos y 289 millones de dólares para los asiáticos en particular (con un ahorro similar para las comunidades vulnerables en países de ingresos medios y bajos). Los resultados anteriores respaldan el imperativo de ahorro de costos que supone la inversión estratégica y de capacitación en estas medidas impulsadas por la IA para mejorar los objetivos estratégicos de sostenibilidad, eficacia, eficiencia y equidad (SEEE) de la atención sanitaria. Estos resultados empíricos informan el argumento bioético global más amplio de las dimensiones gemelas de la dignidad y la seguridad humanas (arraigadas en el relato personalista, multicultural y metafísico de la persona como miembro de la familia humana global) para destacar el imperativo ético de la IA para optimizar el rendimiento del ecosistema sanitario digital global. Semejante fin instrumental es un medio decisivo para avanzar hacia el fin último del bien común, en el que se salvaguarda el bien individual de cada persona y en el que éste encuentra su realización trabajando hacia él.

Resumen Introducción: En este artículo se parte de la perspectiva que afirma que el cuidado es más que una tarea y alude a modos de vinculación de cada persona consigo misma, con las demás y con los ecosistemas. De este modo, se abona el supuesto de que todas las personas tienen saberes sobre el cuidado y pueden cuidar. Objetivo principal: Analizar las percepciones en torno al cuidado que presentan las personas con discapacidad intelectual adultas que asisten a un centro de día de la región centro de Argentina, a partir de sus propias vivencias y significaciones. Método: El estudio se enmarca en el paradigma cualitativo, desde el enfoque de la grounded theory. En este artículo se presentan los resultados de 10 entrevistas en profundidad y 2 círculos de conversación reflexiva (focus group) desarrollados entre los meses de febrero y mayo del año 2022, con 10 personas adultas de diferentes géneros y edades que asisten a un centro de día dedicado a su inclusión social y laboral. Resultados y conclusión: Se evidencian múltiples percepciones en torno al cuidado: como ayuda ante tareas de la vida cotidiana, prácticas ligadas al control, vínculos fundamentados en la reciprocidad. Las personas entrevistadas se reconocen agenciando diferentes prácticas de cuidado. El artículo concluye que las percepciones de las personas que formaron parte de este estudio, son discordantes respecto a la literatura predominante en torno al tema, la cual solo considera el rol de las personas con discapacidad como receptoras de cuidado. Asimismo, presentan percepciones que asimilan, así como también diferencian, las prácticas de control respecto del cuidado. Estas consideraciones convocan a abordajes complejos del tema, que permitan identificar la agencia y la recepción del cuidado en los vínculos más allá de los roles existentes.

Abstract Introduction: This article starts from the perspective that affirms that care is more than a task and alludes to ways of linking each person with himself, with others and with ecosystems. In this way, the assumption that all people have knowledge about care and can care is supported. Main goal: To analyze the perceptions about the care presented by adults with intellectual disabilities who attend a day center in the central region of Argentina, based on their own experiences and meanings. Method and technique: The study is framed in the qualitative paradigm, from the Grounded Theory approach. This article presents the results of 10 in-depth interviews and 2 reflective conversation circles (focus groups) developed between the months of February and May 2022, with 10 adults of different genders and ages who attend a day center, dedicated to their social and labor inclusion. Results and conclusion: Multiple perceptions about care are evident: as help with tasks of daily life, practices linked to control, relations based on reciprocity. People with intellectual disabilities are recognized by executing different care practices. The article concludes that the perceptions of the people who were part of this study are discordant with respect to the mostly current literature on the subject, which only considers their role as recipients of care. Likewise, they present perceptions that assimilate, as well as differentiate, control practices regarding care. These considerations call us to complex approaches to the subject, which allow us to identify the agency and the reception of care in the links beyond the existing roles.

Abstract Protection against labour discrimination on the grounds of disability is guaranteed by the Portuguese legal system. People with disabilities have a diverse range of abilities, so measures to reasonably adapt the workplace play a fundamental role in the maintenance of the labour relationship and the struggle against discrimination. Starting from the problematisation of the dynamic concept of disability, this article reports on the results of two exploratory studies (questionnaires and interviews) carried out in 2022 among disabled people with work experience. The studies focused on the provision of reasonable accommodation measures in their workplace, with a view to understanding the adequacy of the legal solutions offered by current labour legislation, as well as the knowledge and recognition of the rights in question by its holders.

Resumo A proteção da discriminação em razão da deficiência no plano laboral é tutelada pelo ordenamento jurídico português. As pessoas com deficiência apresentam um leque de capacidades diversificadas, pelo que as medidas de adaptação razoável do posto de trabalho assumem um papel fundamental na manutenção da relação laboral e no combate à discriminação. Este artigo, partindo da problematização do conceito dinâmico de deficiência, reporta os resultados de dois estudos exploratórios (questionários e entrevistas), realizados em 2022, a pessoas com deficiência com experiência profissional. Os estudos versaram sobre a disponibilização de medidas de adaptação razoável no posto de trabalho, com vista a compreender a adequação das soluções jurídicas oferecidas pela legislação laboral vigente, bem como o conhecimento e o reconhecimento do direito em apreço por parte dos seus titulares.

Résumé La protection contre la discrimination au travail fondée sur le handicap est assurée par le système juridique portugais. Les personnes handicapées ont des capacités diverses, de sorte que les mesures d’adaptation raisonnable du poste de travail jouent un rôle fondamental dans le maintien de la relation de travail et la lutte contre la discrimination. Partant d’une problématisation du concept dynamique de handicap, cet article rapporte les résultats de deux études exploratoires (questionnaires et entretiens) menées en 2022 auprès de personnes handicapées ayant une expérience professionnelle. Ces études ont porté sur la mise en place de mesures d’aménagement raisonnable sur leur poste de travail, en vue de comprendre l’adéquation des solutions juridiques offertes par la législation du travail actuelle, ainsi que la connaissance et la reconnaissance du droit en question par ses détenteurs.

RESUMEN Frente a los cambios que las personas con discapacidad en el Ecuador han experimentado a partir de los estatutos establecidos en la Constitución del 2008 y las leyes y propósitos subsecuentes, nace la necesidad de realizar la presente investigación sobre el impacto que ha tenido una educación especializada y un apoyo profesional y continuo, en la inclusión tanto social como laboral de las personas con Síndrome de Down, y que de alguna manera permite visualizar la realidad a la que se han enfrentado. El presente trabajo es un estudio de caso de cuatro personas con Síndrome de Down incluidos laboralmente en una empresa privada del Ecuador, de tecnología y servicios petroleros, quienes han mantenido procesos de enseñanza y aprendizaje desde hace varios años en una Institución particular de Educación Especial, la cual ha auspiciado su educación y su inclusión social y laboral mediante el Programa de “Empleo Presencial con Tutoría permanente”. Con la realización de entrevistas a los funcionarios de la empresa, encuestas a los padres de familia, con la observación directa de la situación laboral de estas personas, se pudo concluir que su entrenamiento pre laboral dentro de la institución educativa y la metodología seguida para la inclusión social y laboral, ha facilitado su adaptación a un ambiente real de trabajo y ha permitido que la experiencia resulte positiva para todos quienes participan de la misma, y sobre todo ha hecho posible que puedan mantener sus puestos de trabajo.

ABSTRACT Faced with the changes that people with disabilities in Ecuador have experienced from the statutes established in the 2008 Constitution and the subsequent laws and purposes, the need arises to carry out this investigation on the impact that specialized education and professional and continuous support, in both the social and labor inclusion of people with Down Syndrome, and that in some way allows them to visualize the reality they have faced. The present work is a case study of four people with Down Syndrome included in the work force in a private oil technology and services company in Ecuador, who have maintained teaching and learning processes for several years in a private Special Education Institution. which has sponsored their education and their social and labor inclusion through the “In-Person Employment with Permanent Tutoring” Program. By conducting interviews with officials of the company, surveys with parents, with direct observation of the employment situation of these people, it was possible to conclude that their pre-employment training within the educational institution and the methodology followed for social and labor inclusion, it has facilitated their adaptation to a real work environment and has allowed the experience to be positive for all those who participate in it, and above all it has made it possible for them to keep their jobs.

Abstract The article analyzes the concept of visibility aiming to create theoretical bases to think about the invisibility of the person with disabilities today. In an essayistic perspective, it articulates theoretical review and testimonials of these people on social networks, in three movements: it thinks of visibility as social recognition; it discusses the visible through the notion of visibility regime; it analyzes its current configurations, when its meaning is being reduced to mere display. It deals, finally, with an alterity in contemporary relations between image, visibility and recognition, requiring that people with disabilities, in addition to conquer places in the space of the visible, create different semantics from those hegemonically imposed, even by images. today perspective networks movements recognition regime configurations display deals finally image imposed images

Resumo O artigo analisa o conceito de visibilidade, visando a criar bases teóricas para pensar a invisibilidade das pessoas com deficiência na atualidade. Em perspectiva ensaística, articula revisão teórica e depoimentos dessas pessoas nas redes sociais, em três movimentos: pensa a visibilidade como reconhecimento social; discute o visível pela noção de regime de visibilidade; analisa suas configurações atuais, quando seu sentido está sendo reduzido à mera exibição. Trata, enfim, de uma alteridade nas relações contemporâneas entre imagem, visibilidade e reconhecimento, exigindo que a luta pelo direito das pessoas com deficiência conquiste lugares no espaço do visível, mas crie também semânticas distintas das impostas hegemonicamente, até pelas imagens. atualidade ensaística sociais movimentos social atuais exibição Trata enfim imagem hegemonicamente imagens

ABSTRACT Introduction: There are different causes that prevent muscle movement in a person, for which in some cases there is no medical treatment that stops the progress of the disease. However, there are technological aids that allow individuals with disabilities to improve their skills to help them live autonomously and participate in society. Assisted technology has developed multiple options to improve the quality of life of these patients. Objective: To evaluate the impact of the implementation of a device in people with motor disabilities in the municipality of Montería-Córdoba, Colombia. A design, construction and implementation of the device is established and, finally, its impact is evaluated. Methods: The research is a technological-descriptive type, because, in addition to the analysis of results, it was experimented on the population under study. To this end, criteria such as type of disability, average age and socioeconomic influence were taken into account. Results: The impact of Helpbot device, which interacts with the user and facilitates the execution of movements, was evaluated. Among the features of the device are being portable, wireless and interface between human and machine. Conclusions: Users stated that they felt comfortable with the artifact. It facilitated the development of therapeutic exercises. The positive impact of the device is reflected in the extent to which 100% of the population would recommend the electronic device, therefore the intervention was successful.

RESUMEN Introducción: Existen diferentes causas que impiden el movimiento muscular en una persona, para las cuales en algunos casos no existe un tratamiento médico que detenga el progreso de la enfermedad; sin embargo, existen ayudas tecnológicas que permiten a las personas con discapacidad mejorar sus habilidades para ayudarlos a vivir de forma autónoma y participar en sociedad. La tecnología asistida ha desarrollado múltiples opciones para mejorar la calidad de vida de estos pacientes. Objetivo: Evaluar el impacto de la implementación de un dispositivo en personas con discapacidad motriz en el municipio de Montería-Córdoba, Colombia. Para lo cual se establece el diseño, la construcción e implementación del dispositivo y, por último, se evalúa su impacto. Métodos: La investigación es de tipo tecnológico-descriptivo, debido a que, además del análisis de resultados, se experimentó en la población objeto de estudio. Para ello se tuvieron en cuenta criterios como tipo de discapacidad, edad promedio e influencia socioeconómica. Resultados: Se evaluó el impacto del dispositivo Helpbot, que interactúa con el usuario y facilita la realización de movimientos. Entre las características del dispositivo están ser portátil, inalámbrico e interfaz entre el humano y la máquina. Conclusiones: Los usuarios manifestaron sentirse cómodos con el artefacto; les facilitó el desarrollo de los ejercicios terapéuticos. El impacto positivo del dispositivo se refleja en la medida en que el 100 % de la población recomendaría el dispositivo electrónico, por lo que la intervención fue exitosa.

ABSTRACT: The objective of this study was to identify the understanding of people with intellectual disability about the work environment. The research was carried out from the perspective of the historical-cultural psychology, in a qualitative methodology, with the participation of four adults with intellectual disabilities, over 18 years old, through semi-structured interviews with a narrative perspective. The results indicated that the complex concept Inclusion in the Labor Market was formed by seven initial themes (meaning of work; interpersonal relationships; facilities at work; difficulties at work; self-perception – meaning of intellectual disability; perception of the other in relation to the person with intellectual disabilities; and labor perspectives), which in turn were organized into five complex themes (meaning of work, interpersonal relationships, public policies, attitudinal barriers and labor perspectives). The analysis of the conceptual formation indicates that the narratives had several connotations about inclusion in the work environment, which is an important space for human development. It was concluded that the implementation of studies with a view to understanding inclusion in the labor market becomes relevant for the understanding of human development and for the implementation and planning of inclusion public policies. ABSTRACT environment historicalcultural historical cultural psychology methodology disabilities 1 old semistructured semi structured relationships selfperception self perspectives, perspectives , perspectives) policies perspectives. .

RESUMO: O objetivo deste estudo foi identificar a compreensão das pessoas com deficiência intelectual sobre o ambiente de trabalho. A pesquisa foi realizada na perspectiva da psicologia histórico-cultural, em uma metodologia qualitativa, com participação de quatro pessoas com deficiência intelectual, maiores de 18 anos, por meio de entrevistas semiestruturadas de perspectiva narrativa. Os resultados indicaram que o conceito complexo Inclusão no Mercado de Trabalho foi formado por sete temas iniciais (sentido do trabalho; relações interpessoais; facilidades no trabalho; dificuldades no trabalho; autopercepção – significado da deficiência intelectual; percepção do outro em relação à pessoa com deficiência intelectual; e perspectivas laborais), que, por sua vez, foram organizados em cinco temas complexos (sentido do trabalho, relações interpessoais, políticas públicas, barreiras atitudinais e perspectivas laborais). A análise da formação conceitual indica que as narrativas apresentaram diversas conotações sobre a inclusão no ambiente de trabalho, sendo um importante espaço de desenvolvimento humano. Concluiu-se que a implementação de estudos com vistas à compreensão da inclusão no mercado de trabalho torna-se relevante para a compreensão do desenvolvimento humano e para a implementação e o planejamento de políticas públicas de inclusão. RESUMO históricocultural, históricocultural histórico cultural, cultural histórico-cultural qualitativa 1 anos narrativa sentido interpessoais laborais, laborais , laborais) vez laborais. . Concluiuse Concluiu se tornase torna

RESUMO A falta de intervenção em momento oportuno para pessoas com Artrite Reumatoide pode acarretar dores, processos inflamatórios e incapacidades, fato que motivou a investigação, cujo objetivo foi analisar o itinerário terapêutico da pessoa com Artrite Reumatoide e sua repercussão para produção do cuidado. Abordagem qualitativa, com deslocamento in-mundo para construção de uma pesquisa-interferência, apoiada em alguns conceitos da análise institucional. A produção dos dados ocorreu por meio de entrevista com uma pessoa acometida pela Artrite Reumatoide para construção de seu itinerário terapêutico, posteriormente apresentado a grupos de trabalhadores da Atenção Primária à Saúde. Como resultado, o itinerário terapêutico concentrou-se no percurso assistencial, busca pelo diagnóstico e possíveis soluções para controle da dor. Nos grupos, os profissionais da Atenção Primária à Saúde manifestaram perda de autonomia e repasse da responsabilidade do acompanhamento e do cuidado longitudinal para a atenção especializada. Dessa forma, a não banalização da dor, a necessidade de debate acerca das garantias para o acesso aos serviços com acompanhamento adequado e a existência de novos investimentos para resgate das ações de matriciamento, além de elaboração de protocolos para melhoria do acesso são pistas para o combate à insuficiência dos serviços públicos na garantia do direito universal à saúde. dores incapacidades investigação qualitativa inmundo in mundo pesquisainterferência, pesquisainterferência pesquisa interferência, interferência pesquisa-interferência institucional resultado concentrouse concentrou se assistencial dor especializada forma matriciamento saúde

ABSTRACT The lack of timely intervention for people with Rheumatoid Arthritis can lead to pain, inflammatory processes and disabilities, a fact that motivated the investigation, whose objective was to analyze the therapeutic itinerary of people with Rheumatoid Arthritis and its impact on the production of care. Qualitative approach, with in-world travel to construct interference research, supported by some concepts of institutional analysis. Data production occurred through an interview with a person affected by Rheumatoid Arthritis, to construct their therapeutic itinerary, later presented to groups of Primary Health Care workers. As a result, the therapeutic itinerary focused on the care pathway, search for diagnosis and possible solutions for pain control. In the groups, Primary Health Care professionals expressed a loss of autonomy and transferred responsibility for monitoring and longitudinal care to specialized care. In this way, the non-trivialization of pain, the need for debate about guarantees for access to services with adequate monitoring and the existence of new investments to rescue matrix support actions, in addition to the development of protocols to improve access are clues for the combating the insufficiency of public services in guaranteeing the universal right to health. disabilities investigation approach inworld world research analysis workers result pathway control way nontrivialization non trivialization actions health

RESUMO A falta de intervenção em momento oportuno para pessoas com Artrite Reumatoide pode acarretar dores, processos inflamatórios e incapacidades, fato que motivou a investigação, cujo objetivo foi analisar o itinerário terapêutico da pessoa com Artrite Reumatoide e sua repercussão para produção do cuidado. Abordagem qualitativa, com deslocamento in-mundo para construção de uma pesquisa-interferência, apoiada em alguns conceitos da análise institucional. A produção dos dados ocorreu por meio de entrevista com uma pessoa acometida pela Artrite Reumatoide para construção de seu itinerário terapêutico, posteriormente apresentado a grupos de trabalhadores da Atenção Primária à Saúde. Como resultado, o itinerário terapêutico concentrou-se no percurso assistencial, busca pelo diagnóstico e possíveis soluções para controle da dor. Nos grupos, os profissionais da Atenção Primária à Saúde manifestaram perda de autonomia e repasse da responsabilidade do acompanhamento e do cuidado longitudinal para a atenção especializada. Dessa forma, a não banalização da dor, a necessidade de debate acerca das garantias para o acesso aos serviços com acompanhamento adequado e a existência de novos investimentos para resgate das ações de matriciamento, além de elaboração de protocolos para melhoria do acesso são pistas para o combate à insuficiência dos serviços públicos na garantia do direito universal à saúde.

ABSTRACT The lack of timely intervention for people with Rheumatoid Arthritis can lead to pain, inflammatory processes and disabilities, a fact that motivated the investigation, whose objective was to analyze the therapeutic itinerary of people with Rheumatoid Arthritis and its impact on the production of care. Qualitative approach, with in-world travel to construct interference research, supported by some concepts of institutional analysis. Data production occurred through an interview with a person affected by Rheumatoid Arthritis, to construct their therapeutic itinerary, later presented to groups of Primary Health Care workers. As a result, the therapeutic itinerary focused on the care pathway, search for diagnosis and possible solutions for pain control. In the groups, Primary Health Care professionals expressed a loss of autonomy and transferred responsibility for monitoring and longitudinal care to specialized care. In this way, the non-trivialization of pain, the need for debate about guarantees for access to services with adequate monitoring and the existence of new investments to rescue matrix support actions, in addition to the development of protocols to improve access are clues for the combating the insufficiency of public services in guaranteeing the universal right to health.

BACKGROUND: This paper presents researchers' experiences using participatory, inclusive research methodologies to explore aspects of inclusive education, with children with disabilities, parents, and teachers in Nigeria and Kenya OBJECTIVES: The objective is to describe working with children and adults with disabilities, as research collaborators, alongside local INGO staff and OPD partners METHOD: In Kenya we worked with 9 peer researchers with disabilities to run focus groups and interviews with children with disabilities, parents and teachers about inclusive pre-school education. In Nigeria we ran participatory workshops with children with disabilities, and their parents discussing what makes school and community settings inclusive, to inform the design of a Wellbeing and Inclusion checklist. The studies were based in pilot primary schools and Early Childhood Development and Education (ECDE or pre-school) classes in Nigeria and Kenya respectively. The data produced were recordings and notes from focus group discussions, interviews and activities and reflections from the peer researchers. Data analysis was an inclusive participatory process of thematic analysis carried out in person and online RESULTS: These innovative approaches demonstrate that with careful planning and support, both adults and children with disabilities can be involved very directly in research processes not just as participants but as researchers CONCLUSION: We argue that using participatory, disability-inclusive approaches helps to make the findings more nuanced and genuine and the data and outputs generated uniquely grounded in people's realities and perspectives CONTRIBUTION: These methods can potentially inform the mainstreaming of a disability inclusion approach into international development debates and activities

BACKGROUND: Increasing functional limitations and disabilities have raised the need for comprehensive rehabilitation services at the primary healthcare (PHC) level, particularly in low- and middle-income countries. To support the integration of these services into PHC in South Africa, assessing outcomes from the service users' perspectives is essential OBJECTIVES: This study examined service users' views on their PHC rehabilitation outcomes in a Metropolitan District of Gauteng, South Africa. The aim was to understand perceived changes in activity limitations and participation restrictions following the rehabilitation intervention METHOD: A quantitative survey design, including self-rating measurements and structured interviews, was employed. Thirty-eight rehabilitation service users from eight clinics and community health centres were purposively sampled. Participants rated their pre- and post-rehabilitation levels of difficulty in activity limitations and participation restrictions, with open-ended questions providing additional insights. Data analysis used descriptive statistics, quantitative content analysis, and non-parametric tests RESULTS: Significant improvements in mobility, self-perception, and quality of life were reported by both adult and child service users. Caregivers of child service users also noted positive experiences (p = 0.019) in community, social, and civic life CONCLUSION: This study highlights the perceived positive changes experienced by PHC rehabilitation service users in addressing functional limitations and disabilities. It underscores the effectiveness of integrated rehabilitation service delivery in improving user outcomes CONTRIBUTION: The findings offer valuable insights into how rehabilitation interventions enhance functional abilities, social participation, and overall well-being. By focusing on activity limitations and participation restrictions from service users' perspectives, this study supports the priority of providing person-centred rehabilitation services at the PHC level

The aim of this article is to present how to build a community consisting of the sighted people and of the blind. Dom Bożego Narodzenia in Niepołomice in Poland is an example of such a community, as its members - the sighted people and the blind - form a community modelled on the family. The community was created out of the religious inspiration and its building is in accordance to the Christian values. In order to realise the aim of this article, the author interviewed 10 community members (both the sighted and the blind). The received answers were subjected to quality research. The article presents the teaching of the Catholic Church which concerns the community life of people with disabilities and those fully able-bodied. The next step was to present the characteristics of the residents of the nursing home in Niepołomice. Building the community was presented in two dimensions: vertical and horizontal. The vertical dimension is connected with creating the community with God, and it is inspired by the Christian values in building the family relations. The horizontal dimension is connected with building the human community in its everyday life and in celebrating. CONTRIBUTION: The research undertaken on the community well-being of people with visual disabilities has shown that such people are able to participate subjectively in building a home community similar to a family with sighted people

ABSTRACT The present work will address the possibility of substitutive health consent in cases of people in situation of guardianship, to ascertain whether the legal representative of the person with disabilities would be allowed to decide also on existential aspects. Therefore, an analysis of free and informed consent will be made as materialization of respect for the patient’s autonomy, and their validity requirements, especially regarding capacity. The changes promoted by the Statute of Persons with Disabilities to promote the inclusion and autonomy of persons with disabilities, especially regarding the limits of guardianship, will also be analyzed. guardianship aspects Therefore patients patient s requirements capacity analyzed

RESUMO O presente trabalho aborda a possibilidade de consentimento substitutivo no âmbito da saúde em casos de pessoas em situação de curatela, para averiguar se seria permitido ao representante legal da pessoa com deficiência decidir também sobre aspectos existenciais. Para tanto, apresenta-se uma análise do consentimento livre e esclarecido como materialização do respeito à autonomia do paciente, e dos seus requisitos de validade, especialmente no que se refere à capacidade. São analisadas, também, as alterações promovidas pelo Estatuto da Pessoa com Deficiência para promover a inclusão e a autonomia da pessoa com deficiência, especialmente no que se refere aos limites da curatela. curatela existenciais tanto apresentase apresenta paciente validade capacidade analisadas

RESUMEN Introducción: Experiencia de una comunidad de barrio capitalino (Asunción-Paraguay), movilizada por la grabación de un corto documental a cargo de estudiantes de cinematografía, que inician un proceso de participación para mejorar la calidad de vida de una persona con trastornos mentales y discapacidad psicosocial en situación de calle, logrando su inclusión social. Objetivo : Identificar los elementos claves que favorecieron la participación comunitaria, derivando en el proceso de reinserción social de una persona con trastorno mental y discapacidad psicosocial para contribuir con estrategias innovadoras de modelos de atención basados en la comunidad con enfoque de derechos humanos. Materiales y métodos: Estudio cualitativo de diseño narrativo, utilizando datos de la historia de una persona y la experiencia de una comunidad para describir, analizar e identificar elementos que se consideran claves para los resultados logrados. La experiencia comunitaria fue observada y registrada de cerca durante más de 4 años. Resultado: Participación comunitaria activa en torno a un objetivo colectivo impulsado por un proyecto cinematográfico logrando la reinserción social de una persona con trastorno mental o discapacidad psicosocial que se encontraba en situación de calle. Conclusión : El cine o arte generan un impacto emocional y sensibilizador que acompañados con estrategias sostenibles; facilitación, tecnología, recursos económicos, lugares de residencia o acogida, acompañamiento; permiten aprovechar y movilizar recursos comunitarios, con participación y enfoque de derechos humanos. El resultado en este caso es la inclusión social de una persona con trastornos mentales y discapacidad psicosocial, que se encontraba en el extremo de exclusión social: vida en calle por más de 20 años.

ABSTRACT Introduction : Experience of a community from a neighborhood of the Capital City (Asunción-Paraguay), mobilized by the recording of a Short Documentary by cinematography students, who begin a process of participation to improve the quality of life of a person with mental disorders and psychosocial disabilities who are homeless, achieving their social inclusion. Objective : Identify the key elements that allowed community participation and the social reintegration process of a person with a mental disorder or psychosocial disability to contribute with innovative strategies of community-based care models with a human rights approach. Materials and Methods : A qualitative type study of narrative design, using data from a person's story and the experience of a community to describe, analyze and identify the key elements to the results achieved. The community experience was closely observed and recorded for more than 4 years. Results : active community participation around a collective objective driven by a film project, achieving the reintegration and social rehabilitation of a person with mental disorder who was in street situation. Conclusion : Cinema or art generates an emotional and sensitizing impact that, accompanied by sustainable strategies; facilitation, technology, economic resources, places of residence or reception, support; allows taking advantage of and mobilizing community resources, with participation and a human rights approach. The result in this case is the social inclusion of a person with mental disorders or psychosocial disabilities who was at the extreme of social exclusion; street life for more than 20 years.

Resumen: Recientemente, el Tribunal Constitucional ha dictado una sentencia por la que se confirmaba la constitucionalidad de dos resoluciones judiciales que habían ordenado la vacunación de una persona con discapacidad en contra de la voluntad de su tutor. El objeto de este artículo es analizar qué hubiera ocurrido de haberse producido esos hechos en la actualidad, tras la entrada en vigor de la Ley 8/2021 que regula un nuevo sistema de apoyo a la capacidad jurídica en favor de las personas con discapacidad. Tras analizar las nuevas medidas de apoyo que se han incorporado al Código Civil, se concluye informando de la existencia de un grave desajuste entre el Código Civil y la Ley 41/2002.

Abstract: Recently, the Constitutional Court issued a ruling confirming the constitutionality of two court resolutions that had ordered the vaccination of a person with disabilities against the will of their legal guardian. The purpose of this article is to analyze what would have happened if these events had occurred today, after the entry into force of Law 8/2021, which regulates a new system of support for legal capacity in favor of people with disabilities. After analyzing the new support measures that have been incorporated into the Civil Code, it is concluded that there is a serious mismatch between the Civil Code and Law 41/2002.