RESUMO Objetivo: Reconhecer e abordar a síndrome de Patau, apesar de sua raridade e da baixa expectativa de vida associada, por meio da apresentação de um estudo de caso de uma paciente de dois anos que recebe cuidados em casa por intermédio de serviços de home care. Descrição do caso: Apresentamos uma paciente do sexo feminino que desafiou as probabilidades, com sobrevivência prolongada devida, possivelmente, ao home care. Ela nasceu por cesariana, com 31 semanas + 4 dias, em razão da restrição do crescimento uterino. A mãe, de 36 anos, recebeu cuidados pré-natais adequados e gozava de boa saúde. O diagnóstico da síndrome de Patau foi confirmado por meio de cariótipo após o nascimento. Apesar da gravidade clínica do caso, a paciente, hoje com dois anos, recebe atendimento domiciliar especializado, apoiado por traqueostomia e gastrostomia. Um técnico de enfermagem dedicado 24 horas garante acompanhamento contínuo, e a paciente beneficia-se de check-ups médicos regulares, fisioterapia cinco vezes por semana, sessões semanais de fonoaudiologia, consultas mensais com nutricionista e apoio psicológico contínuo aos familiares. Comentários: Esta abordagem multidisciplinar resultou em melhora motora discreta, destacando o impacto positivo do cuidado integral no seu bem-estar geral. A existência de uma rede robusta de apoio às famílias que enfrentam desafios semelhantes é crucial, e um cuidado multidisciplinar pode prevenir eficazmente as complicações associadas a esta impactante síndrome. Objetivo associada care probabilidades devida possivelmente cesariana 3 dias uterino mãe prénatais pré natais saúde nascimento especializado gastrostomia 2 beneficiase beneficia se checkups check ups regulares semana fonoaudiologia familiares Comentários discreta bemestar bem estar geral crucial

ABSTRACT Objective: To recognize and address Patau’s syndrome, despite its rarity and associated low life expectancy, through the presentation of a case study of a 2-year-old patient receiving Home Care services. Case description: We present a female patient who defied the odds with a prolonged survival, possible due to Home Care. She was delivered via cesarean section at 31 weeks + 4 days due to restricted uterine growth. The mother, aged 36, had received proper prenatal care and was in good health. The diagnosis of Patau’s syndrome was confirmed through karyotyping after birth. Despite the severe clinical nature of the case, the patient, now with two years old, receives specialized home-based care, supported by a tracheostomy and gastrostomy. A dedicated 24-hour nursing technician ensures continuous monitoring, and the patient benefits from regular medical check-ups, physiotherapy five times a week, weekly speech therapy sessions, monthly consultations with a nutritionist, and ongoing psychological support for her family members. Comments: This multidisciplinary approach has resulted in a slight motor response, highlighting the positive impact of comprehensive care on her overall well-being. The existence of a robust support network for families facing similar challenges is crucial, and a multidisciplinary care can effectively prevent complications associated with this impactful syndrome. Objective Pataus Patau s expectancy 2yearold yearold 2 year old services description survival 3 growth mother 36 health birth homebased home based gastrostomy 24hour hour 24 monitoring checkups, checkups check ups, ups check-ups week sessions nutritionist members Comments response wellbeing. wellbeing well being. being well-being crucial

Resumen: Introducción: En inicios del año 2015 se implementa el convenio de complementación público-privado entre los dos principales prestadores del Departamento de San José - Uruguay: AMSJ y ASSE San José, conformándose así la Unidad Departamental de Medicina Paliativa de San José (UDMP). El convenio tiene como principal objetivo asegurar la asistencia paliativa a todos los usuarios de los prestadores involucrados con los principios fundamentales de calidad, equidad y accesibilidad, siguiendo los lineamientos del Plan Nacional de Cuidados Paliativos del Ministerio de Salud Pública de Uruguay. El objetivo es describir y analizar la experiencia de la implementación del primer modelo de complementación público-privado del país en Cuidados Paliativos (CP). Metodología: Estudio descriptivo analítico, retrospectivo que incluye datos de los primeros siete años de funcionamiento del convenio. Resultados: El convenio de complementación público-privado en el Departamento de San José, permitió la creación de un equipo interdisciplinario que asistió en forma continua a 1422 pacientes provenientes de zonas urbanas y rurales, portadores de diversas patologías. La cobertura departamental de CP aumentó de forma significativa, pasando de 24 % en 2014 a 57% en 2021. Estos resultados se lograron implementando un modelo de asistencia paliativa que asegura la continuidad asistencial en internación, consultorio y domicilio, que permitió respetar la autonomía del paciente, logrando el fallecimiento de 67% de los pacientes en su hogar. La satisfacción de usuarios y familiares de la asistencia brindada fue evaluada como muy buena. Conclusiones: El convenio de complementación resultó ser una herramienta eficiente para favorecer el acceso a CP, evitando la superposición de equipos en la asistencia domiciliaria en todo el departamento de San José.

Resumo: Introdução: No início de 2015, foi implementado o acordo de complementaridade público-privado entre os dois principais prestadores do Departamento de San José Uruguai: AMSJ e ASSE San José, formando assim a Unidade Departamental de Medicina Paliativa de San José (UDMP). O principal objetivo do acordo é garantir cuidados paliativos a todos os usuários dos prestadores envolvidos, com os princípios fundamentais de qualidade, equidade e acessibilidade, seguindo as diretrizes do Plano Nacional de Cuidados Paliativos do Ministério de Saúde Pública do Uruguai. El objetivo es descrever e analisar a experiência de implementação do primeiro modelo de complementação público-privada em Cuidados Paliativos (CP) do país. Metodologia: Estudo descritivo, analítico, retrospectivo que inclui dados dos primeiros sete anos de vigência do convênio. Resultados: O acordo de complementação público-privada no Departamento de San José permitiu a criação de uma equipe interdisciplinar que atendeu continuamente 1.422 pacientes de áreas urbanas e rurais, com diversas patologias. A cobertura departamental do CP aumentou significativamente, de 24% em 2014 para 57% em 2021. Estes resultados foram alcançados através da implementação de um modelo de cuidados paliativos que garante a continuidade dos cuidados no internamento, no consultório e no domicílio, o que permitiu respeitar a autonomia do doente, atingindo a morte de 67% dos doentes no domicílio. A satisfação dos usuários e familiares com a assistência prestada foi avaliada como muito boa. Conclusões: O convênio de complementação revelou-se uma ferramenta eficiente para promover o acesso à CP, evitando a sobreposição de equipes na atenção domiciliar em todo o departamento de San José.

Abstract: Introduction: At the beginning of 2015, the public-private complementarity agreement was implemented between the two main providers of the Department of San José Uruguay: AMSJ and ASSE San José, thus forming the Departmental Unit of Palliative Medicine of San José (UDMP). The main objective of the agreement is to ensure palliative care to all users of the providers involved, with the fundamental principles of quality, equity and accessibility, following the guidelines of the National Palliative Care Plan of the Ministry of Public Health of Uruguay. The objective is describe and analyze the experience of implementing the country's first public-private complementation model in Palliative Care (PC). Methodology: Descriptive, analytical, retrospective study that includes data from the first seven years of operation of the agreement. Results: The public-private complementation agreement in the Department of San José allowed the creation of an interdisciplinary team that continuously assisted 1,422 patients from urban and rural areas, with various pathologies. Departmental CP coverage increased significantly, from 24% in 2014 to 57% in 2021. These results were achieved by implementing a palliative care model that ensures continuity of care in hospitalization, office and home, which allowed the patient's autonomy to be respected, achieving the death of 67% of patients at home. The satisfaction of users and family members with the assistance provided was evaluated as very good. Conclusions: The complementation agreement turned out to be an efficient tool to promote access to CP, avoiding the overlap of teams in home care throughout the department of San José.

Abstract Background: During the 19th century, the economic transformations caused by the Industrial Revolution led to a rise in pauperism among vulnerable populations. This phenomenon negatively impacted the health of these populations. Objective: To conduct a historiographical review of Concepción Arenal’s thinking from a nursing perspective. Methodology: This social, historical, and qualitative research focused on the delivery of holistic nursing care to vulnerable individuals based on Concepción Arenal’s social thinking. Data were collected from both primary and secondary sources. Results: Arenal’s book ‘‘La beneficencia, la filantropía y la caridad’’ advocated for the delivery of nursing care at home. To oppose the repulsion caused by hospitals and nursing staff in the 19th century, Arenal supported that nursing care should be carried out by well-educated and trained professional nurses. Conclusion: Arenal was a highly accomplished woman in the field of law. Currently, her ideas are gaining traction within the field of health, particularly in the areas of social and community health.

Resumo Enquadramento: A transformação económica provocada pela revolução industrial, originou inúmeros avanços no campo da tecnologia, no entanto, a nível sociológico determinou a emergência do pauperismo entre as pessoas vulneráveis, deteriorando a sua saúde. Objetivo: Efetuar uma revisão histórica sobre o pensamento de Concepción Arenal a partir da perspetiva da enfermagem. Metodologia: Estudo social, histórico e qualitativo com foco na provisão de cuidados de enfermagem holísticos baseados no pensamento social de Concepción Arenal. Os dados foram recolhidos em fontes primárias e secundárias. Resultados: O seu livro ‘‘La beneficencia, la filantropía y la caridad’’ constitui-se como uma defesa empenhada dos cuidados ao paciente em casa. Arenal defende que esses cuidados deveriam ser realizados por enfermeiros profissionais bem treinados de modo evitar a aversão causada pelos hospitais e pessoal de enfermagem na época. Conclusão: Arenal foi uma mulher de grande sucesso na sua área do direito. Atualmente, as suas ideias e contributo estão a ganhar relelvância no campo da saúde, particularmente nas áreas da saúde social e comunitária.

Resumen Marco contextual: Durante el siglo XIX, la transformación económica derivada de la revolución industrial provocó el pauperismo en las personas vulnerables, hecho que les deterioró su salud. Objetivo: Revisar historiográficamente el pensamiento de Concepción Arenal Ponte, desde una perspectiva enfermera. Metodología: Investigación social, histórica y cualitativa, relacionada con los cuidados de enfermería proporcionados de una forma holística a la persona vulnerable, a través del pensamiento social de Concepción Arenal. Recopilación de información: en fuentes primarias y secundarias. Resultados: Su obra ‘‘La beneficencia, la filantropía y la caridad’’ es una defensa cerrada del cuidado del paciente en su domicilio. Y para evitar la repulsa que, por entonces, causaban los hospitales y el personal de enfermería, Arenal defendió que dicho cuidado fuese realizado por enfermeras profesionales bien formadas y entrenadas. Conclusión: El pensamiento de Arenal, mujer muy destacada dentro del campo del derecho, comienza a ser actualmente muy relevante dentro del campo sanitario y cobra un especial interés tanto en el área social como en el área de la salud comunitaria.

Abstract Objective Child sexual violence is a multidimensional problem of many contemporary societies, affecting people of all sexes, social stratum and age groups. Offenses involving children and adolescents are more serious, given their total or partial dependence on parents and caregivers. Information on child sexual violence in Brazil is found in raw form and without detail. The objective was to compare the information with social and economic data in the state of Paraná. Methods The authors conducted a retrospective study of secondary data from the Notifiable Diseases Information System (SINAN) on cases of sexual violence involving victims aged 0 to 19 years. Results are presented according to notification characteristics. The authors applied exploratory spatial data analysis to assess spatial autocorrelations and investigated relationships by the ordinary least squares regression model. Results Between 2017 and 2021, there were 13,403 reports of child sexual violence in Paraná State, Brazil. Most victims (82.8%) were female and aged between 10 and 14 years. The majority of sexual violence cases (67.8%) occurred in the home environment. The highest rates on a population basis were observed in the North Central and Greater Curitiba regions, mainly in cities with higher population density and with higher rates of other types of violence. Conclusion The results provide data that can promote a broader understanding of the distribution of sexual violence and the state and associated variations. It is expected to improve the provision of care for victims of child sexual violence and assist in strategic planning to prevent future offenses. societies sexes groups serious caregivers detail SINAN (SINAN 1 years characteristics model 201 2021 13403 13 403 13,40 State 82.8% 828 82 8 (82.8% 67.8% 678 67 (67.8% environment regions variations offenses 20 202 1340 40 13,4 82.8 (82.8 67.8 6 (67.8 2 134 4 13, 82. (82. 67. (67. (82 (67 (8 (6 (

Abstract Introduction The optimal time for tracheostomy changes is unknown. Most surgeons opt to wait until five to seven days postoperatively, while more recent studies suggest that changes occurring as early as two to three days postoperatively are also safe. Objective To evaluate the safety of changing the tracheostomy tube later than 14 days postoperatively. Methods The charts of patients who underwent tracheostomy placement and change at a tertiary care center from 2015 to 2019 were retrospectively reviewed, and the subjects were divided into 2 cohorts (late and very late), depending on the time of the first tracheostomy change. Results The study included 198 patients, 53 of whom aged between 0 and 18 years, and 145, aged > 18 years. The time until the first tracheostomy change was on average of 131.1 days. The most common indication for tracheostomy tube placement was prolonged intubation. Adverse events were observed in 30.8% of the cases (the most common being the formation of granulation tissue), a rate that does not differ much from the incidence reported in the literature (of 34% to 77%) when tracheostomy tubes are changed as early as 3 to 7 days postoperatively. There was no significant difference in the incidence of complications between patients undergoing late and very late changes (p = 0.688), or between pediatric and adult subjects (p = 0.36). There were no significant correlations regarding the time of the first or second change and the incidence of complications (r = −0.014; p = 0.84 for the first change; and r = −0.57; p = 0.64 for the second change). Conclusion The late first tracheostomy tube change was safe and could save resources and decrease the financial burden of frequent changes. It is always crucial to provide adequate information about home tracheostomy care for patients. unknown 1 201 reviewed late, , late) 19 5 years 145 1311 131 131. intubation 308 30 8 30.8 tissue, tissue tissue) 34 77% 77 0.688, 0688 0.688 688 0.688) 0.36. 036 0.36 . 36 0.36) −0.014 0014 014 084 84 0.8 −0.57 057 57 064 64 0.6 change) 20 13 30. 068 0.68 68 03 0.3 −0.01 001 01 08 0. −0.5 05 06 6 −0.0 00 −0. −0 −

Hierdie artikel ondersoek twee aspekte wat die outentiekheid van 'n plaaslike regering raak, naamlik die antesedente en die gevolglikheid daarvan. 'n Begripsraamwerk en 'n sosiale ontologie van sorg van "plaaslike regering" is as teoretiese lense vir die ondersoek gebruik. Wat die antesedente van plaaslike regering betref (magtiging, inwoners, natuurlike en fisiese ligging, samewerkende regerings, en vermoëns), het Orania nie as gevolg van magtigende maatreëls soos die Grondwet en voortspruitende wetgewing ontstaan nie, maar as gevolg van 'n kultuurgemeenskap se strewe en gevolglike aankoop van 'n stuk grond. Anders as die inwoners van munisipaliteite in die res van Suid-Afrika het Orania se inwoners verblyfreg verkry op grond van hul onderskrywing van Orania se ontstaansredes. Die eiesoortige fisiese ligging van Orania is doelbewus deur die grondleggers gekies en is bepalend vir die voorsiening van energie, water en ander infrastruktuur-verwante dienste deur Orania Dorpsraad. Die dorpsadministrasie blyk voorts oor voldoende fondse, raadslede en amptenare te beskik om sy funksies uit te voer en sodoende 'n tuiste vir sy gemeenskap te skep. Wat die gevolglikheid van plaaslike regering betref (lewensgehalte, demokratiese en verantwoordelike regering, volhoubare dienslewering, maatskaplike en ekonomiese ontwikkeling, en veilige en gesonde omgewing) blyk die Orania inwonersgemeenskap goeie lewensgehalte te ervaar. Hulle blyk deurlopend betrokke te wees by verskeie gemeenskapsorganisasies, 'n demokratiese en verant-woordingspligtige Orania Verteenwoordigende Raad (OVR) en dorpsadministrasie. Voorts ontvang hulle volhoubare munisipale dienslewering, ervaar maatskaplike en ekonomiese ontwikkeling en leef in 'n veilige en gesonde omgewing. 'n Outentieke plaaslike regering blyk een te wees wat goed geïntegreer is met sy plaaslike gemeenskap en omsluitende wêrelde, voortdurend ongemaklik is met die hede, en met sorg, besorgdheid en sorgsaamheid daarop reageer. Orania is klaarblyklik só 'n plaaslike regering.

Local government is distinguished from other spheres of government based on its unique institutional characteristics, the local nature of its governmental functions, and the territorial delineation of its local jurisdiction. Despite being localised, local governments often fail to meet the specific needs of their residents. The implication is that they are not authentic local governments. This article examines two aspects that have an impact on the authenticity of a local government: the necessary conditions (antecedents) for and the consequences of an authentic local government. These aspects are considered through a case study of Orania as a non-typical instance of a South African local government. A conceptual framework and a social ontology of care are used as theoretical lenses to analyse and understand the antecedents and consequences of a local government. In the preceding article, it was reported that the case of Orania does indeed align with the characteristics associated with the concept of "local government". The antecedents of local government have been shown to be authorisation, residents, natural and physical location, cooperative governments, and capabilities. It appears that Orania did not originate due to authorising measures such as the Constitution and subsequent legislation. Instead, it came about because of a cultural community's aspirations and the subsequent acquisition of a piece of land while obtaining legal authorisation at a later stage by means of an order of the High Court. The residents of Orania do not seem to be accidental inhabitants; but are residents based on their alignment with Orania's founding principles. The unique physical location of Orania was deliberately chosen and plays a crucial role in the provision of energy, water, and other infrastructure-related services by the Orania Town Council and administration. The Town Council and its administration appear to have sufficient funds, competent and ethical council members and officials to carry out its functions and create a home for its community. Regarding the consequences of local government, the Orania community seems to experience a good quality of life while actively engaging in various community organisations, participating in the democratic election of an accountable Orania Representative Council (OVR) and Town Council, receiving sustainable municipal services, and witnessing social and economic development. Additionally, they enjoy a safe and healthy environment. An authentic local government is thus one that is integrally connected to its local community and the surrounding world. It continually grapples with present challenges and genuinely cares for its community and the world it inhabits. Orania, therefore, appears to embody the characteristics of a local government.

Abstract Introduction: Nurses' intervention in the process of parental grief within primary healthcare reflects a fundamental health need, supporting couples in the experience of transition following the death of a child. It is crucial to value the functional and emotional balance of the family, as well as the grieving experience and associated feelings. Goals: To map the scientific evidence on nursing interventions within primary healthcare aimed at couples grieving the death of a child. Methods: A Scoping Review conducted following the PRISMA-ScR methodology and PCC mnemonic: population, concept, and context. Searches were performed in PubMed, CINAHL Complete, B-On, Science Direct, and RCAAP databases. Studies published in Portuguese, Spanish, and English from 2018 to 2023 were included. Identified studies were organized using Rayyan®, and their relevance was analyzed by two independent reviewers. Out of 1021 available articles, seven were included in the review. Results: Four themes emerged from the analysis: grief manifestations (denial, anger, bargaining, depression, acceptance); attitudes and behaviors promoting adaptive grief (religion, rituals, end-of-life care at home, redefining life goals, time occupation, self-care); obstacles to adaptive grief (insufficient professional support and behaviors of others); and support networks for parental grief (formal and informal). Final considerations: The grief experiences of couples allowed mapping of Family Health Nursing interventions aimed at couples grieving the death of a child, highlighting their priority, as well as the need for professional training in this area.

Resumo Introdução: A intervenção dos enfermeiros no processo de luto parental, em cuidados de saúde primários, espelha uma necessidade de saúde basilar, assistindo na vivência de um processo de transição pelo casal. Torna-se crucial a valorização do equilíbrio funcional e emocional da família, bem como a experiência de luto e os sentimentos vivenciados. Objetivo: Mapear a evidência científica sobre as intervenções de enfermagem, em cuidados de saúde primários, dirigidas ao casal enlutado pela morte de um filho. Metodologia: Scoping Review realizada de acordo com a metodologia PRISMA-ScR e a mnemónica PCC: população, conceito e contexto. Pesquisa realizada nas bases de dados PubMed, CINAHL Complete, B-On, Science Direct e RCAAP. Estudos publicados em português, espanhol e inglês foram incluídos, com o limite temporal 2018-2023. Os estudos identificados foram organizados no Rayyan®, e a sua relevância, analisada por dois revisores independentes. Dos 1021 artigos disponíveis, sete foram incluídos na revisão. Resultados: Da análise emergiram quatro temas: manifestações de luto (negação, raiva, negociação, depressão, aceitação); atitudes e comportamentos promotores de luto adaptativo (religião, rituais, fim de vida no domicílio, redefinição de objetivos de vida, ocupação do tempo, autocuidado); obstáculos ao luto adaptativo (apoio dos profissionais insuficiente e comportamentos de outras pessoas) e redes de apoio no luto parental (formal e informal). Considerações finais: As experiências de luto vivenciadas pelo casal, permitiram mapear as intervenções de Enfermagem de Saúde Familiar dirigidas ao casal pela morte do filho, as quais emergem como prioritárias, bem como a formação profissional na área.

Summary: This article initially set out to explore the composite notion of “sacred nature” from the assumption that its advocates can be found within an emerging environmental awareness. However, the term itself introduces the paradox of merging two orders of reality divided by Western thought. In this sense, the article offers an epistemological and ethical reflection. The epistemological reflection was enriched by an exploration of sanctity: here, nature appears as a hierophany where divine, human, and cosmic spheres converge, transcending the dichotomy between nature and the sacred. In the ethical reflection, three interconnected ideas were reviewed: the perception of nature’s sanctity based on a unitary and organic vision of reality; the reverential attitude toward nature implied in the latter perception; and the cosmic responsibility of humans to preserve the universe’s equilibrium. We conclude that a new cosmology and anthropology are emerging, but only in the form of myth, their logos still obscure. Therefore, examining the idea of sacred nature can unlock an experience and discourse able to turn the world into a home of reverential care.

Resumen El artículo se propuso indagar el término compuesto de naturaleza sagrada partiendo del supuesto que la naciente conciencia ecológica posee voces que abogan por ella. Sin embargo, la composición del término trae la paradoja de unir dos órdenes de realidad que occidente ha escindido. De esta manera, se expone una reflexión epistemológica y ética. La reflexión epistemológica se enriqueció con la pesquisa sobre lo sagrado. En ella se descubre a la naturaleza como una hierofanía donde convergen lo divino, lo humano y lo cósmico, por lo que se trasciende la dicotomía entre naturaleza y lo sagrado. En la reflexión ética se revisaron tres ideas interconectadas: la percepción de la sacralidad de la naturaleza se basa en una visión unitaria y orgánica de la realidad, esta percepción conlleva una actitud reverencial hacia la naturaleza que va acompañada de la responsabilidad cósmica del ser humano de mantener los equilibrios del universo. Se concluye que una nueva cosmología y antropología está emergiendo, pero están en el orden del mito, sus logos están todavía en la penumbra, de ahí que la indagación a la naturaleza sagrada puede abrir una experiencia y un discurso que permita hacer del mundo un hogar de cuidado reverencial.

Abstract: This article presents the epistemological dimensions of the term "technocratic paradigm" which is used by Francis in Laudato Si' and Laudate Deum to describe our relationship with technology, and through it, with Creation; the Pope considers this attitude as the human roots of the ecological crisis. The article begins expounding the very concept of technocratic paradigm as it is presented by the Pontiff in the above-mentioned documents; it has been frequently gone under the radar of most of the comments written about the encyclical. The article underlines its cognoscitive dimensions because it argues that those are de origin of the disordering of the relationship between humankind and the environment. The article presents also technology as a form of knowledge, to show more clearly the epistemological biases embedded in the technocratic paradigm and, at the same time, shows how the Pope's position is very close to some of the current philosophical and theological analysis of technology. Finally, it will show the ways to overcome these biases, as proposed by Francis, in order to build a sound relationship with technology that can lead us to care about our Common Home, as the Pontiff and contemporary environmentalist in general, aspire.

Resumen: El artículo presenta los elementos epistemológicos de nuestra relación con la técnica y, a través de ella, con la Creación, descrita con el término paradigma tecnocrático y presentado en Laudato Si' como la raíz humana de la crisis ecológica. En primer lugar se expone el concepto de paradigma tecnocrático elaborado por Francisco en Laudato Si’ y en Laudate Deum, frecuentemente pasado por alto en los comentarios al texto realizados hasta ahora. El artículo enfatiza sus dimensiones cognoscitivas puesto que busca argumentar que ellas son el origen de la deformación de la relación entre el ser humano y el ambiente. Seguidamente, profundizaremos en la concepción de la técnica como un modo de conocer, para después mostrar las deformaciones epistemológicas que genera el paradigma tecnocrático, enfatizando al mismo tiempo las afinidades de la postura del Papa con algunas corrientes de la filosofía y la teología de la técnica contemporánea. Finalmente, plantearemos algunos caminos presentes en la misma reflexión pontificia, que permiten corregir este sesgo de la técnica moderna, en orden a construir una relación con la técnica que nos oriente al cuidado de la Casa Común, como aspira el Pontífice y, en general, el ambientalismo contemporáneo.

Resumen Introducción : Los dispositivos electrónicos y tecno logías de la comunicación se emplean cada vez más frecuentemente para brindar atención médica a los pacientes con hipertensión arterial. El objetivo prin cipal del trabajo fue evaluar la percepción de los mé dicos sobre la utilidad de las tecnologías digitales en hipertensión arterial. Los objetivos secundarios fueron evaluar la prevalencia de uso de tecnologías digitales en el seguimiento de pacientes con hipertensión arterial e identificar las barreras percibidas por los médicos para la implementación de las mismas en la República Argentina. Métodos : Estudio observacional, de corte transversal, multicéntrico, basado en un cuestionario autoadminis trado, en el ámbito de la República Argentina y coordi nado por el grupo de Epidemiología de la Sociedad Ar gentina de Hipertensión Arterial. Población: Médicos que realizan atención de pacientes con hipertensión arterial. Resultados : Se obtuvieron 247 respuestas, 35.6% fue ron mujeres y 64.4% hombres; el 92.3 % consideró de utilidad el uso de tecnologías digitales para mejorar la adherencia terapéutica. Reciben resultados de presión arterial en domicilio por algún medio digital 54.7%. Realizan habitualmente teleconsultas 41.3%, solamente el 6.1% por plataformas digitales específicas de salud, el 29.1% por plataformas no específicas, telefónicamente 21.9% y correo electrónico (asincrónicas) 10.9%. Las principales barreras percibidas fueron: disponibilidad, remuneración económica, reglamentación, problemas de conectividad y falta de tiempo. Conclusión : La percepción de los profesionales es favorable, considerándolas útiles para mejorar la ad herencia terapéutica, por lo que podría tener un efecto facilitador en la implementación de las mismas, aunque las barreras percibidas forman parte de cuestiones or ganizacionales a resolver.

Abstract Introduction : Electronic devices and communication technologies are increasingly used to provide medical care to patients with high blood pressure. The main objective was to evaluate doctors’ perception on the usefulness of digital technologies in hypertension. The secondary objectives were to evaluate the prevalence of use of digital technologies in the follow-up of patients with hypertension and to identify the barriers perceived by doctors for their implementation in the Argentine Republic. Methods : Observational, cross-sectional, multicenter study, based on a self-administered questionnaire, in the Argentine Republic, and coordinated by the Epidemiol ogy group of the Argentine Society of Arterial Hyper tension. Population: Doctors who care for patients with high blood pressure. Results : 247 responses were obtained, 35.6% were women and 64.4% men; 92.3% indicated that the use of digital technologies was useful to improve therapeutic adherence; 54.7% received blood pressure results at home through some digital means; 41.3% regularly carry out teleconsultations, only 6.1% through specific digital health platforms, 29.1% through non-specific platforms, by telephone 21.9% and by email (asynchronous) 10.9%. The main perceived barriers were: availability, financial remuneration, regulations, connectivity problems and lack of time. Conclusion : The perception of professionals is fa vorable, as they considered these technologies useful to improve therapeutic adherence, which could have a facilitating effect on their implementation, although the perceived barriers are part of organizational issues to be resolved.

Resumen Introducción : Los adultos mayores con enfermedades crónicas avanzadas y necesidad de cuidados paliativos están más expuestos a la polifarmacia y a consumir medicación potencialmente inapropiada, la cual genera un alto riesgo de eventos adversos y alteración de la calidad de vida. El objetivo de este estudio fue describir la frecuencia de consumo de medicación potencialmente inapropiada de adultos mayores con necesidad de cuida dos paliativos que ingresaron a cuidados domiciliarios luego de una hospitalización. Métodos : Estudio de corte transversal observacional de registros de dispensación e historias clínicas electró nicas, de adultos mayores en un sistema de cuidados domiciliarios y con necesidades de cuidados paliativos según el rastreo con la herramienta NECPAL, los índices PROFUND y/o PALIAR. Se analizó el consumo de fárma cos durante los 180 días posteriores al ingreso a cuidados domiciliarios. Se clasificaron los fármacos como poten cialmente inapropiados según criterios de LESS-CHRON. Resultados : Se incluyeron 176 pacientes, edad prome dio 87.4 años, 67% mujeres; 78% eran pluripatológicos y 22% presentaban una enfermedad única crónica progre siva. La mortalidad a los 6 meses fue 73%. La mediana de consumo de fármacos por paciente fue 9.1 (RIC = 4-9.7). El 87% consumía medicación potencialmente inapropia da, principalmente antihipertensivos, benzodiacepinas y antipsicóticos. Conclusión : Este estudio observó que los adultos ma yores, con necesidad de cuidados paliativos en cuidados domiciliarios, tienen un alto consumo de medicación potencialmente inapropiada. Esto refuerza la necesidad de implementar intervenciones efectivas centradas en el paciente, para prevenir la prescripción inadecuada y estimular la de-prescripción.

Abstract Introduction : Older adults with advanced chronic diseases and palliative care needs are more exposed to polypharmacy and use of potentially inappropriate medication, which generates a high risk of adverse events and impaired quality of life. The objective of this study was to describe the frequency of potentially inappropriate medication use among older adults with palliative care needs receiving home care services after hospital discharge. Methods : Observational cross-sectional study of pharmacy dispensing and electronic health records, of older adults in a home care system and with palliative care needs according to the screening with the NECPAL tool or the PROFUND and/or PALIAR indexes. Dispensed medications during 180 days after admission to home care were analyzed. Medications were classified as po tentially inappropriate according to the LESS-CHRON criteria. Results : We included 176 patients, mean age 87.4 years, 67% were women; 73% were pluripathologic pa tients and 22% had one chronic progressive disease. Mortality at 6 months was 73%. Median frequency of dispensed medications per patient was 9.1 (IQR = 4-9.7). The frequency of potentially inappropriate medication dispensation among patients was 87%, mainly antihy pertensives, benzodiazepines and antipsychotics. Conclusion : This study observed that dispensation of potentially inappropriate medication among older adults with palliative care needs and home care services is very high. This emphasizes the need for effective patient-centered interventions to prevent inadequate prescription and stimulate de-prescription.

BACKGROUND: Despite inpatient rehabilitation many stroke survivors struggle with community reintegration on returning home. The environment to which the stroke survivor returns affects and may limit participation in home and community-based activities. AIM: To describe stroke survivors' lived experiences of the environmental barriers and facilitators to community reintegration in an under resourced urban metropolitan sub-district in the Western Cape, South Africa. METHODS: A descriptive, qualitative study design with a phenomenological emphasis used semi-structured interviews to collect the data from purposefully selected stroke survivors who had been discharged for more than one year following inpatient rehabilitation. Supporting data were collected from interviews with two occupational therapists providing rehabilitation services to the stroke survivors. Deductive priori coding of semi-structured interviews with 11 stroke survivors, based on the environment subsystems described in the Person-Environment-Occupation-Performance (PEOP) model explored the barriers and facilitators to their community reintegration. FINDINGS: Of the six environmental sub systems in the PEOP model the systems and policy, access to information and health education, social determinants of health in the form of poor rehabilitation planning and loss of income as well as the built and natural environment presented the greatest barriers to the stroke survivor participants' community reintegration. However, reintegration was facilitated by social support and social capital, social determinants of health in the form of support groups as well as assistive technologies. CONCLUSION: Community reintegration continues to be a challenge for stroke survivors in an under-resourced urban sub-district due to environmental barriers associated with factors such as poor social support, inadequate implementation of policies and systems, poor compliance with home programmes, low socioeconomic status, poor access within the built and natural environment and inappropriate assistive devices. Several facilitators that occupational therapists can focus on to enable community reintegration included ensuring effective social support, access to community-based organisations, the introduction of home visits and provision of appropriate assistive devices. IMPLICATIONS FOR PRACTICE All stroke survivors must receive a comprehensive discharge plan to facilitate adequate access to continued rehabilitation and support for successful community reintegration. • There must be a specific referral to primary health care rehabilitation services on discharge from hospital. • Occupational therapists at community level have the responsibility to: o advocate for, or assist stroke survivors to self-advocate, the removal of inter-sectoral environmental barriers that limit their community reintegration and community participation, o where possible provide services in the home and involve midlevel workers when conducting home visits to enable successful reintegration into the home and resumption of occupational roles where possible, o look to other resources in their community that can assist in facilitating the community reintegration of stroke survivors to enable access to health, education, productive activities, and social and leisure participation opportunities, o improve their collaboration with the communities that they service.

BACKGROUND: There was a need to investigate the appropriateness of the standard manual wheelchairfor occupational performance in Thulamela Municipality Vhembe District, Limpopo. METHODS: An observational cross-sectional descriptive design using simple random sampling was used to select n=60 wheelchair users who were issued with standard manual wheelchairs between 2014 and 2018. The Wheelchair Outcome Measure was used to investigate the participants' level of satisfaction in engagement in ADL and IADL and the suitability of the wheelchair in terms of the user's comfort and satisfaction with positioning and prevention of skin breakdown. Descriptive statistics were used to analyse the data. RESULTS: The wheelchair users viewed activity participation in the home as important and were generally satisfied with their standard manual wheelchairs while performing occupational activities at home and outside the home. A total of (n=46; 78%) of the participants felt comfortable in their wheelchair. CONCLUSIONS: Wheelchair prescription should take into consideration the occupational choices of the user. Further qualitative studies to explore the factors that determined the participants' choices for their activity participation goals should be undertaken. IMPLICATIONS FOR PRACTICE • Training of new occupational therapy staff in each facility in the Thulamela district to equip them with the skills to prescribe wheelchairs is necessary. • The level of importance that wheelchair participants attached to level of importance of activity participation inside and outside the home was high therefore there is a need to consider the client's occupational choices when prescribing wheelchairs. • The wheelchair needs to facilitate participation in a wide range of occupational choices ranging from self-care activities and watching TV in the home to visiting friends and family and attending events outside the home.

Abstract The informal caregiver provides non-remunerated permanent or regular care to dependent older adults. This qualitative study aimed to identify the perceptions of informal caregivers about motivations, needs, and benefits of caring for dependent older adults. It was conducted with ten Portuguese informal caregivers, based on an instrument with questions about the care provided to older adults and their perceptions about performing this role. The results revealed the following motivations for care: proximity and trust relationship, duty of care, more available family members, home proximity, lack of vacancies, high cost of shelter institutions, and older adults’ desire to remain in their homes. The primary care activities for older adults are hydration, hygiene, food, therapeutic administration, companionship, emotional support, comfort, entertainment, and promoting autonomy and dignity. The needs identified by the caregivers were home, social security, and the caregiver’s employer support, financial help, psychological support, and training to care for the older adults. The benefits of informal care for dependent older adults were prompt family support, physical and emotional security, affection, and companionship. This study gives voice to crucial citizens. nonremunerated non remunerated role relationship members vacancies institutions homes hydration hygiene food administration companionship support comfort entertainment dignity security s help affection citizens

Resumo O cuidador informal presta cuidados permanentes ou regulares a pessoas idosas em situação de dependência, sem remuneração. Objetivou-se identificar as percepções de cuidadores informais sobre motivações, necessidades e benefícios do cuidado ao idoso dependente. Estudo qualitativo realizado com 10 cuidadoras informais portuguesas, a partir de um instrumento com questões sobre o cuidado prestado ao idoso e suas percepções sobre o exercício dessa função. Os resultados revelaram como motivações para o cuidado: relação de proximidade e confiança, dever de cuidar, familiar mais disponível, proximidade da residência, inexistência de vagas e elevado custo das instituições de acolhimento e desejo do idoso permanecer na sua habitação. Os principais cuidados aos idosos são: hidratação, higiene, alimentação, administração terapêutica, companhia, apoio emocional, conforto, entretenimento, promoção da autonomia e dignidade. As necessidades identificadas pelas cuidadoras foram: apoio domiciliário, da segurança social e da entidade empregadora do cuidador, ajuda financeira, suporte psicológico e capacitação para cuidar do idoso. Os benefícios do cuidado informal para o idoso dependente apontados foram: celeridade do apoio familiar, segurança física e emocional, afeto e companheirismo. Este estudo dá voz a cidadãos cruciais. dependência remuneração Objetivouse Objetivou se 1 portuguesas função confiança disponível residência habitação são hidratação higiene alimentação terapêutica companhia emocional conforto entretenimento dignidade foram domiciliário financeira companheirismo cruciais

Abstract: Palivizumab, a humanized monoclonal antibody against the respiratory syncytial virus (RSV), currently is indicated in groups at higher risk of developing severe RSV disease, such as extreme premature infants and patients with hemodynamically significant heart disease. In Chile, this strategy is guaranteed by Law 20850 (Ricarte Soto Law). Nevertheless, barriers to its administration included the need to transfer these labile patients and exposure to other users, with the risk of contagion in waiting rooms. Objective: to describe the impact of the palivizumab administration strategy in a home care program for high-risk patients. Patients and Method: retrospective, descriptive, observational cohort study of patients born before 32 weeks of gestation or weighing less than 1500 grams, who received palivizumab between January 2019 and December 2021 at the Hospital Dr. Sótero del Río. Results: 272 patients were included (median gestational age: 30 weeks). The percentage of doses administered at home was 35.9% (2019) and 37.2% (2021). Each dose of 2020 following the administration in Neonatology, was administered at home during the COVID-19 pandemic. The median interval between doses was as recommended. Adherence was over 90%. The unadjusted incidence of RSV infection was 5.7% (2019), 0% (2020), and 0.9% (2021). Conclusions: palivizumab administration was adequate and timely; home indication was associated with high adherence rates and an administration interval between doses in line with current recommendations.

Resumen: El palivizumab, anticuerpo monoclonal humanizado contra virus respiratorio sincicial (VRS), se encuentra indicado en grupos de mayor riesgo de desarrollar una enfermedad grave por VRS como los prematuros extremos y pacientes con cardiopatías hemodinámicamente significativas. En Chile, esta estrategia está garantizada por la Ley 20850 (Ley Ricarte Soto). No obstante, su administración presenta barreras como la necesidad de traslado de estos pacientes lábiles y la exposición a otros usuarios, con riesgo de contagios en salas de espera. Objetivo: Describir el impacto de la estrategia de administración de palivizumab en un Programa de atención domiciliaria en pacientes de alto riesgo. Pacientes y Método: Estudio observacional de cohorte retrospectivo, descriptivo, de los pacientes nacidos antes de las 32 semanas de gestación o con menos de 1500 gramos, que recibieron palivizumab entre enero 2019 y diciembre 2021 en el Hospital Dr. Sótero del Río. Resultados: Se incluyeron 272 pacientes (mediana de edad gestacional: 30 semanas). El porcentaje de dosis administradas en domicilio fue 35,9% (2019) y 37,2% (2021). Todas las dosis de 2020 posteriores a la administración en Neonatología se aplicaron en domicilio en el contexto de la pandemia por COVID-19. La mediana del intervalo entre dosis coincidió con lo recomendado. La adherencia fue superior al 90%. La incidencia no ajustada de infección por VRS fue 5,7% (2019), 0% (2020) y 0,9% (2021). Conclusiones: la administración de palivizumab fue adecuada y oportuna; la indicación domiciliaria se asoció con elevadas tasas de adherencia y un intervalo de administración entre dosis acorde a lo recomendado.